I've lost count of the number of people over the last couple of weeks who have told us that they know someone who had epilepsy when they were a child, but that they outgrew it and now they're just fine. I'm torn, because I want very much to believe that, for us too, this will be a short-term thing, that it's just a little speed bump in Lizzie's life; but another part of me recalls the very grave expression on the neurologist's face and the dire predictions he was making about her future. Two conditions he mentioned as potential diagnoses for Lizzie--Ohtahara syndrome and Dravet syndrome--are not conditions that she would ever outgrow. Of course, she could also have neither of those, so until we get test results, guessing at what she might have is pointless. (As an aside, Googling conditions that your child might or might not have is an exercise in torture. I don't recommend it.) We have an appointment at the epilepsy clinic on Thursday, so I am hopeful that we'll know more then.
On a brighter note, Lizzie's been doing really well the last few days. She has not had very many seizures, and she's been smiling and looking around as any normal 4-month-old will do. I don't know if it's the anti-seizure medicine that's working so well, or the B6 or folinic acid supplements that are doing the trick, but whatever it is, we're grateful.
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