We took Lizzie to her neurology appointment today. Dr. K thinks she's looking good and doing well. He decided to take her off of the pyridoxine and leucovorin she's been on since last September. He also increased her dose of Keppra (the anti-seizure med). She'll still take it twice a day, just 0.5 mL more than before. He said she's still on a pretty low dose, but he wants to keep it as low as possible as long as it's working for her. He said he does not need to do another EEG at this time because the most recent one she had, in March, was similar to the one she had prior to that, in October.
Dr. K will be gone for the next year on a leave of absence, but he is assigning her to Dr. A while he's away. He said that, assuming all continues to go well, she needs to be seen again in six months. When it gets closer to her 2nd birthday, he wants another MRI of her brain. He especially wants to see the right side of her brain, where it keeps showing slower brain waves on her EEGs. He wants to see if there's a structural abnormality or something else that might be causing the slower brain waves. I'm sure we'll hear more about scheduling the MRI when we see Dr. A in February.
Overall, it was a great visit; very positive!
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